The autism community has grown over the years so that parents around the world can find each other, support each other, and, we believe, find answers together. Whoever you are, if you have a child who has been diagnosed with an Autism Spectrum issue, we would like to hear from you.
Step 1: To get started, there’s a brief consent form to read. This survey is anonymous. We won’t publish or share your personal identifying information.
The Wright Institute – Informed Consent
You are invited to participate in the International Autism Mapping Project. This study has been approved by the Institutional Review Board of the Wright Institute. It’s being done to add to our understanding of how environmental pollutants and toxins in our everyday environments may be contributing to the rising incidence of autism.
Who can participate?
To consent, you must be 18 years old or older, and the biological parent of a child with a diagnosis of Autism, or Autism Spectrum Disorder born after January 1, 2000. Mothers and fathers may both participate.
What type of questions will I be asked?
There will be some questions to understand where you lived during pregnancy, the type of employment you had, and the type of everyday household toxins that you may have been exposed to, and also questions to help us understand some of the health issues your child has. There are a few questions which ask about what kinds of employment related exposures your own parents may have had.
What are the benefits of participating?
There may be no personal benefit to you as a parent, but it may increase our collective knowledge about the environmental causes for the rising incidence of autism.
How will my privacy be protected?
Your name and email or address will not be part of the study data. It will be stored in a separate, physically secure location in order to protect your privacy. We will not share that information with any outside group, nor store it “in the cloud” or on an insecure or networked computer. You will not be identified in any reports or publications resulting from this study.
Once I start, do I have to complete the Survey?
You can stop and quit at any point. Taking part in the study is voluntary.
What are some of things I should anticipate in answering these questions?
While there may be some positive feelings to participating, questionnaires can also make people tense and annoyed. Remember that you may stop your participation at any time. For some of the questions, you might have to jog your memory.
There may be questions you can’t answer. There will be an option to say you don’t know, and there will also be several opportunities to write comments.
Plan on giving yourself about 20 minutes to fill it out Survey #1.
Step 2: Click on the link below to indicate consent. Write “I consent” in the body of the message. You should then get an auto reply with a participant number. Once you get your number, go to the menu item “Begin Survey #1. Thanks!
Another way: to Consent without using E-mail, just go to the Surveys and begin!
When asked for a number, use a number you make up. Maybe your mother’s birthday plus your favorite number, but any long number (6 digits or more) will do. No short numbers like just “7” please (it’s been used) — we want you to have your own anonymous ID to use in future Surveys. That saves us having to ask you things again and will make other surveys better and shorter. Write down the number and keep it! Thanks!!
Now go back to the Menu or click here to “Begin Survey #1”
To contact us about any problems or concerns:
James Diamond, M.D. firstname.lastname@example.org
Emily Diamond, Psy.D email@example.com
Wright Institute’s Institutional Review Board
Virginia Morgan firstname.lastname@example.org”>email@example.com
For written correspondence:
Virginia Morgan, Institutional Review Board
The Wright Institute
2728 Durant Ave.
Berkeley, CA 94704, U.S.A.